
The New York Times published an interesting article this week on food allergies. I will admit my first reaction was feeling like those of us who have children with allergies were being under minded...again. But, I read the entire article and found it very interesting, particularly those of us who deal with multiple food allergies.
The article states...
Doctors say that misdiagnosed food allergies appear to be on the rise, and countless families are needlessly avoiding certain foods and spending hundreds of dollars on costly nonallergenic supplements. In extreme cases, misdiagnosed allergies have put children at risk for malnutrition.
And avoiding food in the mistaken fear of allergy may be making the overall problem worse — by making children more sensitive to certain foods when they finally do eat them.
I am not suggesting there is often a misdiagnosis of peanut allergies. Most of children with this diagnosis had a reaction...a violent reaction. That is proof positive that there is indeed an allergy. But, often food allergies come in pairs. Some children who are allergic to peanuts are also allergic to other legumes or even soy. This diagnosis was made from blood work alone, oftentimes after that nasty peanut reaction.
Even though these children have eaten these things without any apparent problems in the past, parents become so terrified of seeing any repeat reactions that they avoid anything that might possibly illicit any sort of reaction. Certainly understandable!!
The article goes on to state:
While the blood tests can help doctors identify potentially risky foods, they aren’t always reliable. A 2007 issue of The Annals of Asthma, Allergy & Immunology reported on research at Johns Hopkins Children’s Center, finding that blood allergy tests could both under- and overestimate the body’s immune response. A 2003 report in Pediatrics said a positive result on a blood allergy test correlated with a real-world food allergy in fewer than half the cases.
I know from personal experience that blood tests can be wrong. We had the opposite problem this article states. Blood work showed no peanut allergy. His food challenge resulted in a visit to the ER. Not only did he have a peanut allergy, it was a very bad one!
The article concludes with this:
Just as an allergy indicates oversensitivity to certain foods, it may be that doctors and parents have become oversensitive to food allergies. In an essay in The British Medical Journal in December, Dr. Nicholas A. Christakis, a professor at Harvard Medical School, argues that an “overreaction” to allergy is leading to unnecessary testing and false positives. “If the kid has been doing fine, I would advise parents not to get allergy testing, because the results are more likely to be false positives than true positives,” Dr. Christakis said in an interview. “If they do think they need allergy testing, be extremely measured and go to reputable people.”
You can read the entire article here. If you are dealing with multiple food allergies, this article might (or might not!) give you something to thik about. I will admit when we dealt with milk and egg allergy, I just accepted it and prayed it would go away. It did and life is much easier now. If, however, these two did not go away, I might look into the fact a possible misdiagnosis or overreaction.
Food allergies go much further than just what you put in front of your child at each meal. It affects them emotionally and physically, as well with their level of nutrition. As parents, we need to make sure all the food we are avoiding are absolutely necessary.
If this has piqued your interest, you should see your allergist (or possibly a different one than your regular one) to discuss this issue. (Please don't take matters into your own hands!)
(**Please let me reiterate that I am not asking my readers to question a PA diagnosis, particularly if there has been a past reaction. I am addressing this to people who are dealing with groups of foods and not just peanuts alone.**)




5 comments:
I can understand this...testing is so unreliable and it just makes me crazy! My son definately has a peanut allery. Had a reaction and tested postiive on skin tests and blood tests. Then there are the others...Positive skin tests on some things and then negative later...totally different positives on the blood (rast) tests! So frustrating, I don't know what to avoid!! karen in nc
Thank you for all your great work.
I'd love to set up a link exchange with my blog which takes an inspirational look at living a full life with a peanut allergy and also have products available designed for travel.
Let me know what you think.
Peanut Free Peanut Allergy Website
www.peanut-free.com
(this is long, I am sorry!)
Below this is a testimony that I shared on my blog last May. Up to this point my husband and I didn't have peace to stop our vigilance in protecting our son from peanuts. I just knew that when the Lord provided peace to us about it, then we could pursue more testing and make sure he was good. Our hope is that we can get a food challenge done in the clinic someday and have Will be free. Sometime in January, I started having peace about Will's peanut allergy also being healed. I knew that my husband would need the same peace about it before we would do anyting and I waited. In any case, I had read your post the other day and then shared it with my husband. He mentions to me after he read it that he wondered if maybe Will was ready to be tested....So I have made all the proper calls and we need to go through more rast testing and a skin test before a food challenge can be done. Of course they won't do the food challenge unless one of the other tests come back relatively clear from peanuts. What got me excited too was that my sister felt prompted to be specifically praying that Will could eat peanuts on the same day that my husband and I were feeling led to have him tested. So, we are hopeful. Will's blood was drawn today so I am praying for a clean test and he can move on to the next level...Lord let it be so!!! Anyway, I wanted to thank you for posting it and I also wanted to share the testimony I had put on my blog because the Lord was sooo good to us and I want to shout it over the rooftops! Thanks for listening!
finally...here is the testimony!
Hebrews 11:1 Now faith is being sure of what we hope for and certain of what we do not see.
We have a testimony to share!
Three weeks ago we had a special speaker visiting our church for the weekend. He was Scott Ennis and he is a missionary to Nigeria, West Africa. Anyway, he spoke at our Missions Banquet, our Sunday morning services and he also was asked to lead our Sunday night prayer meeting. Near the end of the Sunday night service he called those forward that wanted prayer for healing. I felt quickened that I was supposed to bring William forward for prayer so I went into the nursery and brought him forward. (Cool note was that Minsan who was playing drums and couldn't see me, had the exact same quickening.) They anointed him with oil and prayed for him.
Due to the nature of Will's allergy issues, it is impossible at first glance to see if he is healed. So we agreed that we would just continue on as normal all the while wondering if he indeed was healed. The following Sunday Randy Ruiz was speaking for our Sunday night prayer meeting. My hearts cry all night was that the Lord would reveal to me if Will had indeed been healed. I knew that I could play many a head game with it either way and so I was praying specifically that the Lord would use someone to speak His heart out loud to me. Since Randy was giving some prophetic words I thought that maybe he would say something, why not! But my heart was open to whomever the Lord might chose if that was His will.
Well, the night came to a close and there was nothing, UNTIL, just as I was leaving the sanctuary Joni stopped me. She said that she felt like the Lord had healed William last week when he was prayed for and wondered if there was anyone to find out. I told her that since the Lord used her to confirm Will's healing to me, I felt good about trying egg and soy foods on him and see what will happen.
I shared with Minsan what had happened and him and I both had faith to try eggs and soy on him. SOOOO, I started adding eggs to his foods and he was eating things that have soy in them. Guess what?! He hasn't broken out. In fact his skin looks fantastic. The places where the soy would cause a break out on his skin, is silky smooth. In fact he has eaten many an item with egg too and not one rash on his tummy where he used to break out. He is happy and healthy!
In fact, it has been just about 2 weeks now that we have been feeding him different things without any problems. We have not been so bold with the peanuts, but have been having some fun with the egg and soy. Quite exciting and super faith building!! This personal example with Will has coincided with the chapters on Faith in the Firm Foundations study that we are facilitating on Wednesday nights.
So we decided to have a RAST test done to prove that he is healed with the doctors numbers. We were able to get in yesterday for the blood draw and were told that we would have to wait until Friday to hear back on the results. Well, they called today with the results. You know what, his numbers show that he is just as allergic to eggs and soy as he was before and the peanut allergy, well that one even showed his level even higher!
But you know what the Lord is speaking to us? Romans 4:17 As it is written: "I have made you a father of many nations." He is our father in the sight of God, in whom he believed-the God who gives life to the dead and calls things that are not as though they were.
You know, the test says he isn't healed, but William's clean skin and perfect health show something completely different. We are believing God that William is healed and plan to continue feeding him things with soy and egg in them. We are going to scream it from the roof tops that our faith is in our God!
UPDATED: One thing that happened when William had his testing done in January was that he showed up with a Wheat allergy on the RAST test in addition to the peanut, soy and eggs that he already had. Since William wasn't having any reactions whatsover with it, the Doctor explained that it was called a false positive. I am also beleiving that for William for the soy and eggs :)!
Wow April! That sounds amazing!! Yes, God is so much bigger than any food allergy.
As it sounds like you are doing, please make sure you do not give your son peanuts at home! Some allergists advise you to but it is not a good idea. Really, the same goes for any food challenge.
I did milk and egg challenges at home with no problems last year. Now that I know more, I wish I had done it at the hospital. It turned out fine but you never know.
As a note about eggs, my husband was allergic as a child. He was able to eat baked goods with eggs but not things like scrambled eggs. Back then they didn't know about food allergies like they do now. But it is possible there is an egg allergy but just not to small amounts. Please discuss this possibility with your allergist before giving him a large amount of egg. I've heard too many horror stories and it really scares me!!
Thanks for your testimony. We need more of that on this blog!! Praise God!!
I am in total agreement about not feeding him peanuts without being at the hospital. Especially now that we are in the system I am quite certain that it would be labled as child endangerment if something went wrong...
Yeah, the only reason we tried the egg and soy at home is because they were not as severe. His only reaction to those had been exzema and rashes. I can't even begin to tell you how cool it was to have him not break out from them. What was cool was just a couple of months before Will had accidently eaten a cracker with soy in it at church and sure enough he broke out from it. I think having that mistake so close to this one really made him being rash free all the more amazing! God is amazing!
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