What I wish I had known when we were diagnosed:
1.) Read the labels EVERY TIME. Things change in manufacturing facilities and what may have been safe one day may not be the next. Reading a label even when I have bought a product a million times is crucial.
2.) Get Educated. When I first started digging around to learn more when we were first diagnosed, it scared me to death and I couldn't read it. Now that I've been living with PA for a while, I read everything I can get my hands on. Even the "scary stuff" is beneficial to learn something from. Education has allowed my "Mommy instincts" to develop more fully.
3.) Get a Medic Alert Bracelet. When he was still a baby, I did not see the necessity in this. Now that we have one, however, I wish I had done it from day one. Tyler's bracelet identifies his allergy and give directions in the event of an emergency. It reminds those around him of his allergy and what to do and also sparks conversation of those who are not familiar with his problem.
4.) Develop an Emergency Plan. This helps everyone in his life know what to watch for and what to do if it happens. Plus, it makes me feel a lot better about leaving him in the care of others.
5.) Have a peanut free home. A child needs one place they can go and feel completely safe. Home should be a place where they know there is no danger of peanuts or peanut residue harming them. It's the one place they can completely let their guard down and be a kid!
6.) Some children react if they are in the same room with peanuts. While we have never had this issue, I think it is due to the fact I simply don't allow Tyler in the same room as peanuts. I've read numerous instances of children becoming very ill if someone is simply sitting across the room eating a PB & J.
7.) My husband and I are peanut free even if we are away from Tyler. Even a microscopic speck of a peanut can cause a reaction. So, in the somewhat rare instance that we are away from Tyler, we don't eat peanuts. The residue left on our skin or clothes could pose a harm to him. Even though we both love peanuts, we love Tyler more.
8.) Grief is normal in the beginning. I was a little surprised at how hard I took the news initially. But gradually, like anything traumatic, it gets easier with time. Allow the grief process to work itself out without being totally consumed and depressed by the allergy. You control the allergy, not the other way around.




14 comments:
IVE HAD A PEANUT ALLERGY FOR ALMOST 13 YEARS, IM 15 AND RECENTLY AT SCHOOL I WAS TAKEN TO THE HOSPITAL BECAUSE OF A POTENTIAL REACTION, EVER SINCE THEN, I CANT SEEM TO RETURN TO MY NORMAL LIFESTYLES. THE BIGGEST MOST ANNOYING CHANGE, IS PROBOBLY THE FACT THAT IM MORE MENTALY AWARE OF THE THREAT OF JUST HAVING RESIDUE ON YOUR HANDS. BEFORE THE INNCIDENT I NEVER EVEN THOUGHT ABOUT MY ALLERGY, I WAS CAREFUL WITH FOODS, BUT NOT ABOUT MY HANDS, AND BEING A NAIL BITTER, ITS TOUGH TO RESIT THE TEMPTATION OF BITTING UR NAILS, BECAUSE THERE COULD BE PEANUT RESIDUE ON THEM. ITS BEEN 3 MONTHS AND IM STILL VERY PANICKY ABOUT IT, SO IM WONDERING, WILL THAT PANICKED FEELING GO AWAY?
Hi Anonymous. I'm so sorry for your recent reaction. I know that must have been very scary for you. My son's reaction in June is something he will never forget and he is only 3.
Since I don't have PA myself, I can't tell you what it is like to live with this fear personally, only what it is to fear for your child. But I do believe over time your anxiety will get better.
As you know, keeping your hands out of your mouth is crucial. If you are a nail biter, they sell things you can put on your nails (if you're a male, its clear and not noticeable) that tastes terrible. Using it can help you train yourself to stop nail biting. Also, be sure to wash your hands frequently, particularly if you are in public. If a sink is not available, carry a few baby wipes with you.
I am sure you know this, but ALWAYS carry your EpiPen with you. That is the difference between a positive outcome and a terrible one if a reaction does occur.
If you are doing everything you can to stay safe, then you will gradually feel a little more at ease with the world. If are still struggling in several months, a counselor might help. In our area, we have a food allergy clinic that has a psychologist on staff that meets with people dealing with this very issue. If you can't find someone that specializes in this sort of thing, a general counselor can be beneficial, as well.
I don't know if you are aware of this, but experts are saying that they believe there will be a treatment for PA. (Check out this article (http://www.reuters.com/article/latestCrisis/idUSN01401804). I plan to write something about this on the blog soon.
Until a treatment is available, make sure those close to you understand your allergy and even know how to use the EpiPen. Like I said, I think in time and developing some new habits, your anxiety will get better.
Hope a Mom's perspective helps. My e-mail is on the sidebar if you need any more help.
-Robyn
Hi. I just found out (today 9-30-08) that my 14-month old daughter is allergic to peanuts and nuts.
She has had eczema since about 2 months and I was directed by her dermatologist to find if she was allergic to anything that might be making her eczema worse.
Prior to today's visit, a daycare teacher gave her a granola bar that had peanut butter and she had a reaction, so I had forewarning that she might be allergic...I just didn't realize the extent.
I never thought that I would have to learn how to use an EpiPen or become exceptionally
"label-conscience."
It's kind of overwhelming, not to mention scary.
I came across this site searching for some tips and more information about PA.
Thanks for this site!
Thanks for the list! I am a peanut butter lover myself, but I won't touch the stuff anymore - I think your number 7 item is so important. I would hate to kiss or touch my child and have her react because I ate some peanuts or peanut butter. As you say, I love my kid more.
Ally B - it is scary. Be scared and learn and I think you'll find that you become less scared as you become more knowledgeable. This is a terrible thing for a child to have, but there are lots of terrible things my kids DON'T have. Good luck!
Thanks for the note! Your site is awesome and I can't wait to read more. So much information. Thanks for sharing.
I'm going to add you to my blog list if you don't mind!
Trisha
I referenced your very well done site in my recent post about Halloween and allergies.
Here is the link in case you or other parents are interested
http://www.yourerdoc.com/peanut-and-food-allergies-and-halloween-in-the-er/
My husband and I just found out in February that our 27 month old daughter has a severe peanut allergy (she's also allergic to soy as well). Since then we have made our home peanut/tree nut/soy free.
We had an appointment with her peditrician this afternoon and he advised us to get her a medical alert id...that is how I stumbled across your blog tonight.
Words cannot even describe how wonderful reading some of your posts has made me felt. In the past few weeks I have been trying to educate myself the best that I can on this subject (with the help of our allergist, peditrician, various books, and the internet). It's all very overwhelming and I truly and sincerely appreciate all of the hard work that you have put into this blog. While reading your post about grocery shopping with your children...I thought of a trip to the store that my daughter and I made last week where I felt the same emotions of fear and panic that she would be coming in contact with peanuts.
Thank you, thank you, thank you. I look forward to reading more of your posts.
Thanks so much for your comment Michele! I'm sorry about the diagnosis. I'm happy the blog has helped you. Writing has been great therapy for me as I deal with Tyler's PA. Connecting with other FA moms is the best, isn't it?
Thanks again for your comment!!
Hello!
Last week we confirmed that our 15 month old has a peanut allergy. Thank you for all of your hard work on this site, it has been a wonderful resource for me.
I also wanted to share our story and warn others that the blood test may not always read true. We had our son tested for a possible milk allergy at the beginning of the year. The allergist figured that since we were testing for milk we might as well test for peanut and tree nuts. Well milk came back negative but peanut came back a slight positive. We were sent for Blood work...the blood work came back with very very low numbers and my allergist told us she didn't think he had a allergy to peanuts and to try and give him some peanut butter. Well in the back of my mind I thought....no way I will wait until he is older, but didn't plan on worrying about it. So one day as the baby and my 4 year old were complaining (and screaming) they were hungry after picking them up from spending the day with my sisiter-in-law I not thinking (sigh) opened up a pack of Lance peanut butter crackers and gave 1 to the older and 1/2 one to younger hoping to hold them off until we got home (less than 5 minutes). We by the time we got home the baby had hives, was beginning to cry (which sounded gurgled), dig at his throat, wheeze....his throat was closing. I gave him benadryl and called 911.
I guess the blood test was wrong.
It was soo scary how quick it happened. I still am in the freaked out mode and I am sure it will get easier as I become more informed.
Sorry for the long post but just wanted to warn others.
Thanks again for all the information. It is nice to know we are all in this together.
Kathy
Hi!
I have been reading a lot of Allergy Websites and I just want to say that I feel that yours is wonderful! I wish that I discovered it sooner because it is comforting to find a sensitive and insightful commentary. I am mom of three. My two oldest (much older) do not have food allergies. My youngest (5 yr. old daughter) has a peanut and mustard seed allergy. She is also allergic to blackcurrant and to castor seed to a lesser extent. The peanut presented itself back at 10 mos of age. It was such an unsettling thing to learn but I removed all peanut from the home at that time. Thank goodness she was doing o..k. . In late 2006 we learned quite by accident that our little one had a mustard seed allergy as well. She came in contact with a smidge of mustard residue on a piece of a plain bread pretzel and went into anaphal. Fortunately I had an epi pen jr that was given for her peanut allergy (just 3 months prior) and I was able to reverse the reaction .That epi was a true lifesaver. The paramedics said I was but w-o that we couldn't have done it so well. I learned a lot about the peanut and the mustard the past 2 yrs. I hope that all children (and adults ) will be tested for mustard seed allergy if they have a peanut allergy especially....as they 40% of the time go hand in hand i read. Avoidance is key but the mustard is listed on labels in all of Europe (approx 26 countries) and will be In Canada in 2010 they say (WHO) I pray that USA will do the same so that we may better educate the public and especially those who do not know about this and may be thinking that their child is having peanut reactions again and again . Thanks for listening Best of luck for your wonderful Website.
Thanks, Carol
I'm the owner of an organic restaurant which is certified and trained to safely cater to all common food allergies (gluten, wheat, dairy, egg, nut, soy, etc). I am however very disappointed to see that families living with food allergies (who know and understand the dangers and effort required to prepare a safe meal) many times come to my restaurant only for the allergy meal and go elsewhere for the rest of the family's meals. My prices? About $1-2 more than my non-organic competitors for a pizza. I often ask myself whether we've made food into a commodity - no one is willing to pay for truly quality, pure, and nutritious food. We'll pay nig bucks to be seen in the high-fly restaurant and drink $50 wines but won't pay an extra $2 for a 100% organic meal.
I have recently been using NWA and they switched to Delta(who serves peanuts on there flights). DO you find it hard to fly safe and what airline do you use? Most airlines won't announce that your kid has a PA anymore!
Christine
Hi we're flying to disney on the 28of Aug 2010. And we would like to know if there is any way we can prevent a reaction since both our sons ages 5 and 7 have nut allergies. We have bought seatcovers for the plane and are looking for masks for the kids no luck yet but we keep trying.This is their first flight and we are scared that the worst is going to happen, any suggestions would be helpful. thanks
Randy
terrific blog!!! - I was researching online for information - I am the "team mom" for a high school volleyball team and the terrific young lady who is the team manager has a peanut allergy. We had been buying 'healthy' team snacks consisting of energy bars etc - which she was wise enough NOT to eat. Now we feel bad because she is not getting anything to eat during away games so we are searching for additional healthy snacks. Are you aware of any brands we can look for that are peanut free?
also when we check the labels are we just looking for "peanuts, and peanut oil" or is there a 'chemical' name we should watch for too?
thanks so much!!!!!
Diva Deb!
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